They came across a craniofacial surgeon in North Carolina that was able to create a plan for baby Adam’s care. He diagnosed the newborn with the rare genetic disorder Bartsocas-Papas Syndrome, which would require a series of complex surgeries.
“Is he going to be perfect? Yes, he’s already perfect. Is he going to be normal by the world’s standards? Never.” said Adam’s doctor, John van Aalst.
Adam’s community has come together to raise over $100,000 to make these surgeries a possibility, which will allow him to be able to get surgeries to open and close his mouth and eyes.
With the love and support of his parents and his receptive community, Adam is sure to lead a life that will leave us all in awe.
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